Tag Archives: organ donation

When the good part of life hits you hard

What do you do when good stuff hits you hard? Have you ever had moments when you just sit back and think, “holy smokes, I have it good?” There are piles of crap pulling for my attention. Gross, right? Crass, … Continue reading

Posted in Liver disease | Tagged , , , , , , , , , , , , , , , | 2 Comments

4 years today. A good, good Father.

My eyes opened for the day just before 4:00 AM. I listened to the birds coming awake in the trees just outside our bedroom window and thought “how blessed I am.” I spent some time talking to God about the … Continue reading

Posted in Liver disease, Organ transplant, transplant recovery | Tagged , , , , , , , , , , , , , , | Leave a comment

My wide-eyed wonder girl gave me a wonderful gift

Yesterday, the joy-for-life tears that have been ever-present since my liver transplant in May of 2012, fell off my cheeks again. It was 6:55 in the morning. I gave up on sleep shortly after 3:00 from tossing and turning and … Continue reading

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Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

What??? My doctor visit was not perfect???

    I’ve had three years of follow-up visits since my transplant. That means three years of blood lab visits and three years of the 108 mile drive from my door to Lahey Hospital in Burlington, Massachusetts. And, except for … Continue reading

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Reliving my transplant nightmare

Remember that book I was working on writing? I let it sit, untouched, from September 2013 until December 2014 when I gave it to my friend Jan Perry to read and clean up. She was my second reader. It’s about 60,000 … Continue reading

Posted in Liver disease, Organ transplant, pain | Tagged , , , , , , , , , , , , , , , , , | 7 Comments

Facing burnout. Moving from surviving to thriving.

My last post was January 1. That’s not a good sign for me. You know how that scratchy throat or that slight pressure behind your eyes sometimes is a symptom of a bigger problem, a virus? When I stop writing it’s … Continue reading

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