Tag Archives: life after transplant

Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

“This is what it’s all about, baby!”

I just did something impossibly crazy. Yesterday, shivering and soaked to the skin, I cried ugly tears while rolling across a finish line after pedaling 180 miles in the Trek Across Maine. People under umbrellas shook cow bells, blew horns … Continue reading

Posted in transplant recovery | Tagged , , , , , , , , | 4 Comments

What??? My doctor visit was not perfect???

    I’ve had three years of follow-up visits since my transplant. That means three years of blood lab visits and three years of the 108 mile drive from my door to Lahey Hospital in Burlington, Massachusetts. And, except for … Continue reading

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Three bonus years, today

Three years ago, today, my family was getting ready to head to Lahey Hospital in Burlington from the nearby hotel where we checked in the night before. It was the day we had been praying for for a 368 days … Continue reading

Posted in Liver disease | Tagged | 1 Comment

My Christmas gift made me cry 5 months later.

According to my family, I am a tough buy. I don’t understand it at all but I have heard it for almost thirty years. I think I’m an easy person to get gifts for. I mean, I like a lot of things. … Continue reading

Posted in Liver disease | Tagged , , , , , , , , , | 2 Comments

Facing burnout. Moving from surviving to thriving.

My last post was January 1. That’s not a good sign for me. You know how that scratchy throat or that slight pressure behind your eyes sometimes is a symptom of a bigger problem, a virus? When I stop writing it’s … Continue reading

Posted in recovery, time management, transplant recovery | Tagged , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

May I sit next to you, forever? These seats are spectacular!

Seats. Good seats are expensive. Cheaper seats don’t provide as good an experience. Some seats are soft and comfortable and others are rock hard and a pain to sit on. Some seats are narrow and constricting and others are roomy enough for … Continue reading

Posted in discouragement, facing death, recovery | Tagged , , , , , , , , , , , , , , , , | 3 Comments