Tag Archives: life after transplant

This is getting old. Immunosuppression sucks

Back in 2011, I said this blog would reflect my transplant journey and would be honest. I like to try to keep things positive but … I am sick again. No, not liver stuff. It’s just regular stuff. I’ve been … Continue reading

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4 years today. A good, good Father.

My eyes opened for the day just before 4:00 AM. I listened to the birds coming awake in the trees just outside our bedroom window and thought “how blessed I am.” I spent some time talking to God about the … Continue reading

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Anxiety up, heart rate up and nervous about something out of my control

Faith. Trust. Providence. Anxiety. One of those words is entirely out of place but, right now, it trumps the others in me. I’m nervous. My heart rate is up and I feel like I am a rubber band that has been … Continue reading

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My wide-eyed wonder girl gave me a wonderful gift

Yesterday, the joy-for-life tears that have been ever-present since my liver transplant in May of 2012, fell off my cheeks again. It was 6:55 in the morning. I gave up on sleep shortly after 3:00 from tossing and turning and … Continue reading

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Wasting my bonus days

I think I’m wasting my bonus days. Or, at least, I think I’m wasting too much of them. Imagine you have a giant bowl of mashed potatoes and are a huge spud fan. If you have a gallon of mashed potatoes, you … Continue reading

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Living on the edge of “uh oh” after transplant

It’s quiet. The smells of blueberry muffins baking in the oven and fresh chocolate-raspberry coffee are pulling me awake. My twelve pound, white miniature schnauzer is sleeping soundly on the back of the couch. I know all this will change … Continue reading

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Life: have you tried turning it off and on?

Reboot. It’s the first word used by technology nerds in answer to a multitude of questions: “Why is my phone doing …?” “Why is my TV not …?” “Why is my computer so …?” “Why is my toaster …?” Have … Continue reading

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Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

“This is what it’s all about, baby!”

I just did something impossibly crazy. Yesterday, shivering and soaked to the skin, I cried ugly tears while rolling across a finish line after pedaling 180 miles in the Trek Across Maine. People under umbrellas shook cow bells, blew horns … Continue reading

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What??? My doctor visit was not perfect???

    I’ve had three years of follow-up visits since my transplant. That means three years of blood lab visits and three years of the 108 mile drive from my door to Lahey Hospital in Burlington, Massachusetts. And, except for … Continue reading

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Three bonus years, today

Three years ago, today, my family was getting ready to head to Lahey Hospital in Burlington from the nearby hotel where we checked in the night before. It was the day we had been praying for for a 368 days … Continue reading

Posted in Liver disease | Tagged | 1 Comment

My Christmas gift made me cry 5 months later.

According to my family, I am a tough buy. I don’t understand it at all but I have heard it for almost thirty years. I think I’m an easy person to get gifts for. I mean, I like a lot of things. … Continue reading

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Facing burnout. Moving from surviving to thriving.

My last post was January 1. That’s not a good sign for me. You know how that scratchy throat or that slight pressure behind your eyes sometimes is a symptom of a bigger problem, a virus? When I stop writing it’s … Continue reading

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May I sit next to you, forever? These seats are spectacular!

Seats. Good seats are expensive. Cheaper seats don’t provide as good an experience. Some seats are soft and comfortable and others are rock hard and a pain to sit on. Some seats are narrow and constricting and others are roomy enough for … Continue reading

Posted in discouragement, facing death, recovery | Tagged , , , , , , , , , , , , , , , , | 3 Comments

Holy Freak-out, Batman! What just happened?

Sheesh, that was out of control. It felt like I was a combat veteran in one of the thriller movies I like to watch. You know the scene? A car backfires and the loud bang sends the vet into a … Continue reading

Posted in burnout, change, Liver disease, recovery | Tagged , , , , , , , , , , , , , | 3 Comments