Category Archives: transplant

You can’t spell “community” without u and i

This liver transplant journey has been the most difficult period of my life but I see lots of good that has come out of it. For instance, I now am part of a pretty tight community. We all speak the … Continue reading

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Yesterday, all my troubles seemed so far away

Saturday day was awesome. For the first time since I can remember I felt 98% normal. I felt like I was not one of the .000017% percent of Americans receiving a liver transplant this year. I felt like Pinochio after … Continue reading

Posted in change, chronic illness, depression, discouragement, Fatty liver, Fatty Liver Disease, hope, Liver disease, organ donation, Organ transplant, pain, transplant | Tagged , , , , , , , , , , , , | 4 Comments

When I look at the stars I see …

When was the last time you looked at the stars? I’m not talking about a quick glance. I’m talking about putting everything on pause, silencing the noise and looking. When was that? Thursday night, August 2, I sit on a … Continue reading

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Our transplant story in 2 minutes. Please watch and share.

Josh and I were just at Soulfest 2012 with thousands of music fans in Gilford, NH. We were asked to share our liver transplant story and they put together a professionally produced video that gave us the opportunity to encourage … Continue reading

Posted in End Stage Liver Disease, facing death, Fatty liver, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , | 1 Comment

You have 5 minutes. Go!

My friend AJ could sell an ice cube to an Eskimo. He’s a people person with an enthusiasm and positive attitude that will not quit. It’s like he has a magnet inside him that makes you want to be around him. … Continue reading

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Thoreau or Eastman? We’re writing our stories.

“Hey kid! What’s your story?” I can hear my dad asking. It’s a bit of a strange question, isn’t it? I mean, if you’ve never heard it asked before, how might you answer? Is he asking what my favorite story … Continue reading

Posted in chronic illness, discipleship, discouragement, Fatty Liver Disease, Liver disease, NASH, transplant | Tagged , , , , , , , , , , , , , | 6 Comments

First a new liver and now a new baby!

Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , | 2 Comments

Got goals? Mine have changed

It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, pain, transplant | Tagged , , , , | 4 Comments

Status update

I’m lying here in my hospital bed watching “the Big Bang theory” and figured I would give you a status report. I had blood drawn, a CAT scan, chest x-ray, and blood cultures. I won’t know any of the results … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 6 Comments

Good reports!

A brief update: Josh and I just had our one month follow up appointments at Lahey and everything looks great! Josh is nearing being cleared to do whatever he wants. He’s a popular guy among the staff. All of my … Continue reading

Posted in End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , | 5 Comments

Weird to realize

Ya know what? I just realized something. Despite the pains of healing from my transplant … I haven’t felt this good in a year – alert, sharp, some energy. For the past year I have just felt “sick” all the … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 8 Comments

Pictures – some I have no memory of

Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged | 7 Comments

Day by day

On May 7, 2012 surgeons opened me up and put in a piece of my sons liver to replace my own diseased liver. Without a transplant my death was certain. Readers of this blog know the emotions that I went … Continue reading

Posted in chronic illness, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, religion, transplant | Tagged | 9 Comments

My belly is bigger than the Goodyear Blimp!

Picture this. Tonight you go to bed weighing 150. Tomorrow you wake up weighing 170. Your pants are tight. After dinner you change into comfy sweats. The next morning you step on the scale and it says 181. What???? It’s … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Find God, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Leave a comment

When your “innie” becomes an “outie”

When Robin was pregnant with each of our three kids her tiny frame meant she had a giant belly. She was one of those women who was all belly. We were pretty excited and we joked a lot. I remember … Continue reading

Posted in facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , | 3 Comments