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Category Archives: organ donation
Misinformation in the transplant community?
If you believed in your transplant team enough to have them cut into you, cut out an organ and sew in a donated one, why do you refuse to believe them when it comes to vaccines? Continue reading
Posted in End Stage Liver Disease, Lahey Clinic, NASH, organ donation, Organ transplant
Tagged anti-vaxx, COVID, Donate Life, fact check, misinformation, tansplant, vaccines
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Will your Rotary club meet the 100% challenge?
Following a presentation that I made at our District 7780 Rotary gathering at Fort Williams in Cape Elizabeth, Maine during the summer of 2019, the District Governor, Andrew Glazier, asked, “why couldn’t we make this a challenge for all our … Continue reading
Folding bikes, sunshine and hope for transplant.
Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading
Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery
Tagged American Liver Foundation, life after transplant, liver transplant, MELD, NASH, organ donation, transplant, transplant recovery
1 Comment
I can’t breathe …
There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged chronic illness, cirrhosis, death, Donate Life, Facing death, Fatty liver, fear, Graft verses Host, GVHD, health, Liver disease, liver transplant, loss, organ donation, Organ transplant, transplant
29 Comments
Is the world going “to hell in a hand-basket?” What can we do?
“What is this world coming to?” I heard one of my friends ask that question this morning. It’s not the first time I’ve heard it asked. In fact, I think I hear it asked every time something tragic happens at … Continue reading
Where do you find peace? Where do you soak it in?
Think of a favorite place; a place where you feel peace saturate your soul. Do you have such a place? I have friends who will think of the vast view at the top of a mountain trail while others will … Continue reading
Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Find God, hope, Liver disease, organ donation, Organ transplant, transplant
Tagged chronic illness, Chronic pain, cirrhosis, depression, finding peace, helping a friend with chronic illness, hope, Liver disease, liver transplant, NASH, organ donation, transplant
2 Comments
Today my friend begins a new life!
Lahey Clinic, Burlington, MA 7:30 AM Lydia gave her mom thumbs up as they wheeled her to the operating room. 8:30 Anne Marie is now heading into the operating room to receive her new liver. It has begun! Anne Marie’s … Continue reading
Do you remember last Christmas? I don’t.
I’m thoroughly enjoying this Christmas season. I mean, apart from all the normal bickering about “the reason for the season,” I’m enjoying looking at Christmas lights, hearing Christmas carols and opening cards brought each day by the postman. (Aside: I … Continue reading
Posted in change, Christianity, Christmas, chronic illness, End Stage Liver Disease, facing death, hope, Liver disease, organ donation, Organ transplant
Tagged Christ in Christmas, christmas story, encephalopathy, forget, forgive, home, lifestyle, nativity, religion, spirituality, traditions
1 Comment
I used to be thankful … but now?
Today’s the day. It’s the day when everyone in the U.S. pauses and thinks about being thankful. Thankful Facebook statuses roll up my screen one after another. Thankful for family, friends, spouse, pets, house, new job, provision, troops, Jesus, new … Continue reading
Posted in change, Christianity, End Stage Liver Disease, facing death, Fatty Liver Disease, hope, Jesus, organ donation, Organ transplant, transplant
Tagged Chronic pain, cirrhosis, death, Facing death, family, fear, group, holiday, hope, illness, Lahey Clinic, Linscott, Liver disease, organ donor, organdonor.gov, support, thankful, thanks, thanksgiving, Thanksgiving idea, transplant, waiting
2 Comments
My Aunt Betty just got THE CALL!
My Aunt Betty just got the call! She’s heading to Lahey for her liver transplant! Pray! I’m so excited for her. Remember when I was at the stage when I couldn’t stay out of the hospital for more than 10 … Continue reading
Posted in chronic illness, Fatty Liver Disease, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant
Tagged encephalopathy, liver transplant, NASH
5 Comments
Um, I like boobies …
Boobs. It’s National Boob Month. Football players wear pink cleats, baseball players swing pink bats and teenage boys get tossed out of school for wearing t-shirts proclaiming, “I like boobies!” We all know they are just trying to get away … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged <3 Boobies, A feel a day keeps the doctor away, American Liver Foundation, Big or small save them all, Boobs, Boobs like these are worth fighting for, Boobs: They could use your support, breast cancer, breast cancer awareness, cirrhosis, Don't let mounds develop in your mounds, Donate Life, Don’t let cancer steal 2nd base, Fatty liver, Have you had your boobs squeezed lately, healing, Hope for Hooters, I heart boobies, I’m here for the boobs, Liver, liver awareness month. health, Liver disease, liver transplant, Maine, my real ones tried to kill me, NASH, October, Operation: Healthy Hooters, organ donation, Save the Girls, Save the Tatas, Save the woman behind these boobs!, Sweat and Tears, These babies are self-examined, transplant, Yes my boobs are fake
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Why do I get to live while others die?
I’ve had a few experiences in the last week that I don’t really know how to process. I’m feeling kind of down. Okay, I’ll spill it. I met a few organ donor families who are filled with grief. I feel … Continue reading
Posted in anger, chronic illness, depression, Liver disease, love, organ donation, Organ transplant
Tagged chronic illness, Chronic pain, cirrhosis, faith, focus, grief, healing, hope, Liver disease, liver transplant, NASH, organ donation, survivor's guilt, transplant
3 Comments
You are so pushy! Thank you.
Do you remember back almost about a year ago? One of the first fundraisers to help with my transplant was a rubber bracelet that said “P U S H.” It was an acronym for “pray until something happens” or some … Continue reading
Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Liver disease, NASH, organ donation, Organ transplant, pain
Tagged bear with one another, bracelet, cancer community center, Christian, chronic illness, Chronic pain, cirrhosis, depression, direction, family, fight back festival, healing, help, hope, Jake Groom, Lahey Clinic, Liver, Liver disease, liver transplant, love your liver, NASH, never quit, organ donation, Pineland, PUSH, quitting, transplant
4 Comments
Am I out of the woods?
I love vanilla soft serve ice cream. My wife hates it. Since most soft serve places don’t offer hard ice cream we usually end up at shops with pretty teenage scooper girls digging into ice cream buckets. While I prefer … Continue reading
Posted in change, chronic illness, depression, discouragement, End Stage Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant
Tagged chronic illness, Chronic pain, depression, direction, fear, focus, healing, help, hope, Liver disease, liver transplant, NASH, organ donation, transplant
8 Comments
Drinking from the Same Dipper 