Category Archives: NASH

Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

I can’t breathe …

There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , | 29 Comments

My Aunt Betty just got THE CALL!

My Aunt Betty just got the call! She’s heading to Lahey for her liver transplant! Pray! I’m so excited for her. Remember when I was at the stage when I couldn’t stay out of the hospital for more than 10 … Continue reading

Posted in chronic illness, Fatty Liver Disease, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , | 5 Comments

Um, I like boobies …

Boobs. It’s National Boob Month. Football players wear pink cleats, baseball players swing pink bats and teenage boys get tossed out of school for wearing t-shirts proclaiming, “I like boobies!” We all know they are just trying to get away … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

You are so pushy! Thank you.

Do you remember back almost about a year ago? One of the first fundraisers to help with my transplant was a rubber bracelet that said “P U S H.” It was an acronym for “pray until something happens” or some … Continue reading

Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Liver disease, NASH, organ donation, Organ transplant, pain | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , | 4 Comments

Hey fatso! Are you ready yet?

It’s time. You know it is. It has to be. Your doctor has told you. Your wife has hinted or your husband has avoided the hornets’ nest for the most part. You’re too fat, right? I remember the first time … Continue reading

Posted in diet, direction, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Liver disease, NASH, Organ transplant | Tagged , , , , , , , , , , , , , , , , , , , , | 6 Comments

Thoreau or Eastman? We’re writing our stories.

“Hey kid! What’s your story?” I can hear my dad asking. It’s a bit of a strange question, isn’t it? I mean, if you’ve never heard it asked before, how might you answer? Is he asking what my favorite story … Continue reading

Posted in chronic illness, discipleship, discouragement, Fatty Liver Disease, Liver disease, NASH, transplant | Tagged , , , , , , , , , , , , , | 6 Comments

A tear-filled prayer that I do not want to publish

PREFACE: I do not want to publish this. It’s raw, too personal and almost invasive. But, I promised God that I would write honestly back when he “spoke” to me in May 2011. It’s my prayer. Please don’t try to fill … Continue reading

Posted in Liver disease, NASH, organ donation, Organ transplant, pain | Tagged , , , , , , , , , | 6 Comments

First a new liver and now a new baby!

Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , | 2 Comments

Got goals? Mine have changed

It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, pain, transplant | Tagged , , , , | 4 Comments

Status update

I’m lying here in my hospital bed watching “the Big Bang theory” and figured I would give you a status report. I had blood drawn, a CAT scan, chest x-ray, and blood cultures. I won’t know any of the results … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 6 Comments

Good reports!

A brief update: Josh and I just had our one month follow up appointments at Lahey and everything looks great! Josh is nearing being cleared to do whatever he wants. He’s a popular guy among the staff. All of my … Continue reading

Posted in End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , | 5 Comments

Weird to realize

Ya know what? I just realized something. Despite the pains of healing from my transplant … I haven’t felt this good in a year – alert, sharp, some energy. For the past year I have just felt “sick” all the … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 8 Comments

Day by day

On May 7, 2012 surgeons opened me up and put in a piece of my sons liver to replace my own diseased liver. Without a transplant my death was certain. Readers of this blog know the emotions that I went … Continue reading

Posted in chronic illness, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, religion, transplant | Tagged | 9 Comments

Cribbage, wheezes, new hat and, oh yeah, A TRANSPLANT DATE!

Picture this, on one side of an antique trunk sits an 80 year old Korean War vet who is a whiz with numbers. On the other side sits someone whom you are sure is a pregnant man with his giant … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Find God, hope, Jesus, Liver disease, NASH, organ donation, Uncategorized | Tagged , , , , , , , , , , , , , , , | 7 Comments