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- When it's Realfeel 35° and I am on my bike bundled up in snow gear, I need to have some fun! Why not make a GPS dra… twitter.com/i/web/status/1… 6 months ago
- Yup, my April goal is 300 miles on my bike for cancer research . Rained yesterday and 35° degrees today. I'm fallin… twitter.com/i/web/status/1… 6 months ago
- RT @gpackiam: Pastors, what if we stop trying to be incredible and just work on being credible? 7 months ago
- RT @sharon_says_so: Listening to understand doesn’t obligate you to agree. Your own beliefs aren’t diminished by learning a new perspecti… 7 months ago
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liver4scott@linscottphoto.comAbout Scott
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Blogs I Follow
- followfbccomblog
- Follow FBC to Guatemala
- Faith in action
- Scott Thoughts
- Project Light to Life
- Austin Americana Studio
- conversations on the fringe
- MaineiacRunner
- Normane3d's Blog
- lethargicsmiles
- RHF INDIA
- newlife4rich
- A Penny for Your Thoughts...
- Charlie's Road to a Kidney Transplant
- our kid needs a kidney
- bringing.faith.home
- Eucatastrophe 101
- Ramblings of a Dying Man
- Maribel's Kidney Story
- Drinking from the Same Dipper
Blogroll
LINKS TO EXPLORE
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Recent Posts
- An escape to the mountains
- COVID 99.7% survivable but half the story
- Misinformation in the transplant community?
- Do you trust your doctor? Your transplant center?
- Why masks actually work
- FOC, I need you
- Merry Christmas and Happy New Year
- I remember when I didn’t have enough breath to speak …
- Too much to ask?
- Some things confuse me.
Post Archives – Past Ramblings
Top Recent Posts & Pages
Quick Edit
Category Archives: NASH
Misinformation in the transplant community?
If you believed in your transplant team enough to have them cut into you, cut out an organ and sew in a donated one, why do you refuse to believe them when it comes to vaccines? Continue reading
Posted in End Stage Liver Disease, Lahey Clinic, NASH, organ donation, Organ transplant
Tagged anti-vaxx, COVID, Donate Life, fact check, misinformation, tansplant, vaccines
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Folding bikes, sunshine and hope for transplant.
Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading
Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery
Tagged American Liver Foundation, life after transplant, liver transplant, MELD, NASH, organ donation, transplant, transplant recovery
1 Comment
I can’t breathe …
There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged chronic illness, cirrhosis, death, Donate Life, Facing death, Fatty liver, fear, Graft verses Host, GVHD, health, Liver disease, liver transplant, loss, organ donation, Organ transplant, transplant
29 Comments
My Aunt Betty just got THE CALL!
My Aunt Betty just got the call! She’s heading to Lahey for her liver transplant! Pray! I’m so excited for her. Remember when I was at the stage when I couldn’t stay out of the hospital for more than 10 … Continue reading
Posted in chronic illness, Fatty Liver Disease, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant
Tagged encephalopathy, liver transplant, NASH
5 Comments
Um, I like boobies …
Boobs. It’s National Boob Month. Football players wear pink cleats, baseball players swing pink bats and teenage boys get tossed out of school for wearing t-shirts proclaiming, “I like boobies!” We all know they are just trying to get away … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged <3 Boobies, A feel a day keeps the doctor away, American Liver Foundation, Big or small save them all, Boobs, Boobs like these are worth fighting for, Boobs: They could use your support, breast cancer, breast cancer awareness, cirrhosis, Don't let mounds develop in your mounds, Donate Life, Don’t let cancer steal 2nd base, Fatty liver, Have you had your boobs squeezed lately, healing, Hope for Hooters, I heart boobies, I’m here for the boobs, Liver, liver awareness month. health, Liver disease, liver transplant, Maine, my real ones tried to kill me, NASH, October, Operation: Healthy Hooters, organ donation, Save the Girls, Save the Tatas, Save the woman behind these boobs!, Sweat and Tears, These babies are self-examined, transplant, Yes my boobs are fake
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You are so pushy! Thank you.
Do you remember back almost about a year ago? One of the first fundraisers to help with my transplant was a rubber bracelet that said “P U S H.” It was an acronym for “pray until something happens” or some … Continue reading
Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Liver disease, NASH, organ donation, Organ transplant, pain
Tagged bear with one another, bracelet, cancer community center, Christian, chronic illness, Chronic pain, cirrhosis, depression, direction, family, fight back festival, healing, help, hope, Jake Groom, Lahey Clinic, Liver, Liver disease, liver transplant, love your liver, NASH, never quit, organ donation, Pineland, PUSH, quitting, transplant
4 Comments
Hey fatso! Are you ready yet?
It’s time. You know it is. It has to be. Your doctor has told you. Your wife has hinted or your husband has avoided the hornets’ nest for the most part. You’re too fat, right? I remember the first time … Continue reading
Posted in diet, direction, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Liver disease, NASH, Organ transplant
Tagged American Liver Foundation, bicycle, Biggest Loser, Christian, chronic illness, cirrhosis, cycling, diet, diet plan, exercise, health, hope, lifestyle change, Liver disease, liver transplant, lose 100 pounds, NASH, organ donation, training, transplant, weightloss
6 Comments
Thoreau or Eastman? We’re writing our stories.
“Hey kid! What’s your story?” I can hear my dad asking. It’s a bit of a strange question, isn’t it? I mean, if you’ve never heard it asked before, how might you answer? Is he asking what my favorite story … Continue reading
A tear-filled prayer that I do not want to publish
PREFACE: I do not want to publish this. It’s raw, too personal and almost invasive. But, I promised God that I would write honestly back when he “spoke” to me in May 2011. It’s my prayer. Please don’t try to fill … Continue reading
Posted in Liver disease, NASH, organ donation, Organ transplant, pain
Tagged chronic illness, Chronic pain, cirrhosis, hospital, Liver disease, marriage help, NASH, stress, transplant, unemployment
6 Comments
First a new liver and now a new baby!
Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading
Got goals? Mine have changed
It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading
Status update
I’m lying here in my hospital bed watching “the Big Bang theory” and figured I would give you a status report. I had blood drawn, a CAT scan, chest x-ray, and blood cultures. I won’t know any of the results … Continue reading
Good reports!
A brief update: Josh and I just had our one month follow up appointments at Lahey and everything looks great! Josh is nearing being cleared to do whatever he wants. He’s a popular guy among the staff. All of my … Continue reading
Posted in End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant
Tagged healing, Liver, transplant
5 Comments
Weird to realize
Ya know what? I just realized something. Despite the pains of healing from my transplant … I haven’t felt this good in a year – alert, sharp, some energy. For the past year I have just felt “sick” all the … Continue reading
Day by day
On May 7, 2012 surgeons opened me up and put in a piece of my sons liver to replace my own diseased liver. Without a transplant my death was certain. Readers of this blog know the emotions that I went … Continue reading
