Category Archives: Lahey Clinic

Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

50 Miles: Hidden tears behind sunglasses

I’m going to be gross for a minute. Skip to the next paragraph now if gross medical stuff makes you want to toss your cookies. Twenty-eight months ago I was lying in a hospital bed at Lahey Hospital with a … Continue reading

Posted in hope, Lahey Clinic, Organ transplant, recovery | Tagged , , , , , , , , | Leave a comment

I’ve got the green light … Now what?

A week ago Josh and I walked through the doors at Lahey Hospital and headed to the transplant wing. When we walk around Lahey we do it like we built the place. We know where everything is because we’ve spent … Continue reading

Posted in change, Christianity, hope, Lahey Clinic, Liver disease, pastor, transplant, transplant recovery | Tagged , , , , , , , , , , , , , , , , , , , , | 3 Comments

Today my friend begins a new life!

Lahey Clinic, Burlington, MA 7:30 AM Lydia gave her mom thumbs up as they wheeled her to the operating room. 8:30 Anne Marie is now heading into the operating room to receive her new liver. It has begun! Anne Marie’s … Continue reading

Posted in chronic illness, End Stage Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged | 1 Comment

My Aunt Betty just got THE CALL!

My Aunt Betty just got the call! She’s heading to Lahey for her liver transplant! Pray! I’m so excited for her. Remember when I was at the stage when I couldn’t stay out of the hospital for more than 10 … Continue reading

Posted in chronic illness, Fatty Liver Disease, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , | 5 Comments

Am I out of the woods?

I love vanilla soft serve ice cream. My wife hates it. Since most soft serve places don’t offer hard ice cream we usually end up at shops with pretty teenage scooper girls digging into ice cream buckets. While I prefer … Continue reading

Posted in change, chronic illness, depression, discouragement, End Stage Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , | 8 Comments

First a new liver and now a new baby!

Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , | 2 Comments

Got goals? Mine have changed

It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, pain, transplant | Tagged , , , , | 4 Comments

Status update

I’m lying here in my hospital bed watching “the Big Bang theory” and figured I would give you a status report. I had blood drawn, a CAT scan, chest x-ray, and blood cultures. I won’t know any of the results … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 6 Comments

Good reports!

A brief update: Josh and I just had our one month follow up appointments at Lahey and everything looks great! Josh is nearing being cleared to do whatever he wants. He’s a popular guy among the staff. All of my … Continue reading

Posted in End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , | 5 Comments

Does God send pain and disease to get his jollies?

Face it. Some days kinda suck. It’s the reality of life. I think without some sucky days that we would not appreciate the good days as much. I think I’m really going to appreciate tomorrow because today? Not so much. I’m … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Lahey Clinic, Liver disease | Tagged , , , , , , , , | 8 Comments

Weird to realize

Ya know what? I just realized something. Despite the pains of healing from my transplant … I haven’t felt this good in a year – alert, sharp, some energy. For the past year I have just felt “sick” all the … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 8 Comments

Pictures – some I have no memory of

Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged | 7 Comments

Day by day

On May 7, 2012 surgeons opened me up and put in a piece of my sons liver to replace my own diseased liver. Without a transplant my death was certain. Readers of this blog know the emotions that I went … Continue reading

Posted in chronic illness, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, religion, transplant | Tagged | 9 Comments