Category Archives: Fatty Liver Disease

Weird to realize

Ya know what? I just realized something. Despite the pains of healing from my transplant … I haven’t felt this good in a year – alert, sharp, some energy. For the past year I have just felt “sick” all the … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 8 Comments

Pictures – some I have no memory of

Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged | 7 Comments

Day by day

On May 7, 2012 surgeons opened me up and put in a piece of my sons liver to replace my own diseased liver. Without a transplant my death was certain. Readers of this blog know the emotions that I went … Continue reading

Posted in chronic illness, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, religion, transplant | Tagged | 9 Comments

Status: Wed May 16′ , 4:45 am

My sister Gloria spent the night with me. She was my guardian angel. She tracked down nurses and medicines and made me comfortable. I started out today with a walk around the wing block . Robin and I are praying … Continue reading

Posted in End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease | 5 Comments

May 10

Hi everyone. Don’t see a more in-depth post from my sister glory that may be coming later. I wanted to be sure to let all you people who read my blog have a little bit of an update. Wow, it’s … Continue reading

Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God | 1 Comment

My belly is bigger than the Goodyear Blimp!

Picture this. Tonight you go to bed weighing 150. Tomorrow you wake up weighing 170. Your pants are tight. After dinner you change into comfy sweats. The next morning you step on the scale and it says 181. What???? It’s … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Find God, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Leave a comment

BIG NEWS – Friday 1/27 is a day I’ll remember the rest of my life.

What was so big? Was it that we closed on our house we were selling? Yeah, that was pretty cool but it’s not the BIG thing. Was it that 90 minutes later we closed on our new house and got … Continue reading

Posted in chronic illness, Fatty liver, Fatty Liver Disease, organ donation, Organ transplant | Tagged , , , , , , , , | 7 Comments

When your “innie” becomes an “outie”

When Robin was pregnant with each of our three kids her tiny frame meant she had a giant belly. She was one of those women who was all belly. We were pretty excited and we joked a lot. I remember … Continue reading

Posted in facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , | 3 Comments

My first two days at Lahey Clinic for Transplantation

We headed to Massachusetts last Wednesday night to avoid hitting the road at 4:30 AM. I was pretty nervous so I worked on keeping my mind occupied with reading and doing some paperwork. I slept maybe 3 hours. Some people … Continue reading

Posted in Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , | 5 Comments

Holding pattern and Christmas blessings

I remember once, years back, when I was in the air above Chicago’s O’hare airport circling and waiting to land. Back then there was no wifi, no tv’s and laptops were few and far between. I was listening to the … Continue reading

Posted in Christianity, chronic illness, Fatty liver, Fatty Liver Disease, hope, Lahey Clinic, Liver disease, NASH | Tagged , , , , , , , , , , | 8 Comments

My liver transplant is in the near future

Neither Robin nor I were prepared for the news Dr. Amy Tien gave us at Lahey. She simply said she is recommending me for a live donor liver transplant. She noted all the things I’ve been through since May, ordered … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Lahey Clinic, Liver disease | Tagged , , , , , , , , , , , | 6 Comments

If God is real, why …

A lot of people don’t get the God thing that I’ve been writing about. I understand. I see the morons on the news picketing at funerals too. I see red-faced screamers yelling into their bullhorns looking like they are going … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, hope, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, peace, religion, vision | Tagged , , , , , , , , , , | 5 Comments

Update: what’s my current status

I’ve had people asking what my status is. Am I “on the list” for a transplant or not? It’s all pretty confusing but I’ll try my best to bring you up to speed. Each time my MELD score climbs above … Continue reading

Posted in Christianity, chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, handicapped, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | 3 Comments

When you’re weak

Yeah, I struggle. I get depressed. I want to give up, then I want to fight. I feel far from God. I feel closer than ever. I feel alone. I feel surrounded. Good days. Bad days. And in it all, … Continue reading

Posted in chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, handicapped, hope, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , | Leave a comment

Nausea song – to the tune of “The Sound of Silence”

Hello nausea, my old friend, You’ve come to talk with me again, Because a feeling softly creeping, Left its rumble while I was sleeping, And the feeling that was planted in my guts Drives me nuts Within the growls of … Continue reading

Posted in Christianity, chronic illness, facing death, Fatty liver, Fatty Liver Disease, handicapped, Liver disease, liver keys, NASH, organ donation, Organ transplant | 1 Comment