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Category Archives: Fatty Liver Disease
Folding bikes, sunshine and hope for transplant.
Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading
Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery
Tagged American Liver Foundation, life after transplant, liver transplant, MELD, NASH, organ donation, transplant, transplant recovery
1 Comment
I can’t breathe …
There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged chronic illness, cirrhosis, death, Donate Life, Facing death, Fatty liver, fear, Graft verses Host, GVHD, health, Liver disease, liver transplant, loss, organ donation, Organ transplant, transplant
29 Comments
Insomnia, Liver disease, Duck Dynasty and Infomercials..
I watch some pretty weird TV shows. Well, maybe they aren’t weird but they certainly are different. Maybe I’m getting old but shows like “Two Broke Girls,” and “Two and a Half Men” are just so crass that I feel … Continue reading
Posted in change, chronic illness, End Stage Liver Disease, Fatty Liver Disease, Organ transplant
Tagged American Pickers, As Seen on TV, changes, Doomsday Preppers, Duck Dynasty, end stage, Forever Lazy, Furniture Fix, humor, Ice Road Truckers, infomercial, insomnia, Liver disease, Pawn Stars, perspective, Slap Chop, sleeplessnes, Storage Wars, transplant
3 Comments
I used to be thankful … but now?
Today’s the day. It’s the day when everyone in the U.S. pauses and thinks about being thankful. Thankful Facebook statuses roll up my screen one after another. Thankful for family, friends, spouse, pets, house, new job, provision, troops, Jesus, new … Continue reading
Posted in change, Christianity, End Stage Liver Disease, facing death, Fatty Liver Disease, hope, Jesus, organ donation, Organ transplant, transplant
Tagged Chronic pain, cirrhosis, death, Facing death, family, fear, group, holiday, hope, illness, Lahey Clinic, Linscott, Liver disease, organ donor, organdonor.gov, support, thankful, thanks, thanksgiving, Thanksgiving idea, transplant, waiting
2 Comments
My Aunt Betty just got THE CALL!
My Aunt Betty just got the call! She’s heading to Lahey for her liver transplant! Pray! I’m so excited for her. Remember when I was at the stage when I couldn’t stay out of the hospital for more than 10 … Continue reading
Posted in chronic illness, Fatty Liver Disease, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant
Tagged encephalopathy, liver transplant, NASH
5 Comments
Um, I like boobies …
Boobs. It’s National Boob Month. Football players wear pink cleats, baseball players swing pink bats and teenage boys get tossed out of school for wearing t-shirts proclaiming, “I like boobies!” We all know they are just trying to get away … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged <3 Boobies, A feel a day keeps the doctor away, American Liver Foundation, Big or small save them all, Boobs, Boobs like these are worth fighting for, Boobs: They could use your support, breast cancer, breast cancer awareness, cirrhosis, Don't let mounds develop in your mounds, Donate Life, Don’t let cancer steal 2nd base, Fatty liver, Have you had your boobs squeezed lately, healing, Hope for Hooters, I heart boobies, I’m here for the boobs, Liver, liver awareness month. health, Liver disease, liver transplant, Maine, my real ones tried to kill me, NASH, October, Operation: Healthy Hooters, organ donation, Save the Girls, Save the Tatas, Save the woman behind these boobs!, Sweat and Tears, These babies are self-examined, transplant, Yes my boobs are fake
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You are so pushy! Thank you.
Do you remember back almost about a year ago? One of the first fundraisers to help with my transplant was a rubber bracelet that said “P U S H.” It was an acronym for “pray until something happens” or some … Continue reading
Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Liver disease, NASH, organ donation, Organ transplant, pain
Tagged bear with one another, bracelet, cancer community center, Christian, chronic illness, Chronic pain, cirrhosis, depression, direction, family, fight back festival, healing, help, hope, Jake Groom, Lahey Clinic, Liver, Liver disease, liver transplant, love your liver, NASH, never quit, organ donation, Pineland, PUSH, quitting, transplant
4 Comments
Yesterday, all my troubles seemed so far away
Saturday day was awesome. For the first time since I can remember I felt 98% normal. I felt like I was not one of the .000017% percent of Americans receiving a liver transplant this year. I felt like Pinochio after … Continue reading
Posted in change, chronic illness, depression, discouragement, Fatty liver, Fatty Liver Disease, hope, Liver disease, organ donation, Organ transplant, pain, transplant
Tagged Christian, chronic illness, Chronic pain, cirrhosis, depression, faith, fear, healing, Liver disease, liver transplant, NASH, patience, transplant
4 Comments
Hey fatso! Are you ready yet?
It’s time. You know it is. It has to be. Your doctor has told you. Your wife has hinted or your husband has avoided the hornets’ nest for the most part. You’re too fat, right? I remember the first time … Continue reading
Posted in diet, direction, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Liver disease, NASH, Organ transplant
Tagged American Liver Foundation, bicycle, Biggest Loser, Christian, chronic illness, cirrhosis, cycling, diet, diet plan, exercise, health, hope, lifestyle change, Liver disease, liver transplant, lose 100 pounds, NASH, organ donation, training, transplant, weightloss
6 Comments
Thoreau or Eastman? We’re writing our stories.
“Hey kid! What’s your story?” I can hear my dad asking. It’s a bit of a strange question, isn’t it? I mean, if you’ve never heard it asked before, how might you answer? Is he asking what my favorite story … Continue reading
First a new liver and now a new baby!
Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading
Got goals? Mine have changed
It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading
Status update
I’m lying here in my hospital bed watching “the Big Bang theory” and figured I would give you a status report. I had blood drawn, a CAT scan, chest x-ray, and blood cultures. I won’t know any of the results … Continue reading
Good reports!
A brief update: Josh and I just had our one month follow up appointments at Lahey and everything looks great! Josh is nearing being cleared to do whatever he wants. He’s a popular guy among the staff. All of my … Continue reading
Posted in End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant
Tagged healing, Liver, transplant
5 Comments
Does God send pain and disease to get his jollies?
Face it. Some days kinda suck. It’s the reality of life. I think without some sucky days that we would not appreciate the good days as much. I think I’m really going to appreciate tomorrow because today? Not so much. I’m … Continue reading
Drinking from the Same Dipper 