Category Archives: facing death

Our transplant story in 2 minutes. Please watch and share.

Josh and I were just at Soulfest 2012 with thousands of music fans in Gilford, NH. We were asked to share our liver transplant story and they put together a professionally produced video that gave us the opportunity to encourage … Continue reading

Posted in End Stage Liver Disease, facing death, Fatty liver, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , | 1 Comment

Hey fatso! Are you ready yet?

It’s time. You know it is. It has to be. Your doctor has told you. Your wife has hinted or your husband has avoided the hornets’ nest for the most part. You’re too fat, right? I remember the first time … Continue reading

Posted in diet, direction, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Liver disease, NASH, Organ transplant | Tagged , , , , , , , , , , , , , , , , , , , , | 6 Comments

First a new liver and now a new baby!

Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , | 2 Comments

Got goals? Mine have changed

It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, pain, transplant | Tagged , , , , | 4 Comments

Does God send pain and disease to get his jollies?

Face it. Some days kinda suck. It’s the reality of life. I think without some sucky days that we would not appreciate the good days as much. I think I’m really going to appreciate tomorrow because today? Not so much. I’m … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Lahey Clinic, Liver disease | Tagged , , , , , , , , | 8 Comments

Day by day

On May 7, 2012 surgeons opened me up and put in a piece of my sons liver to replace my own diseased liver. Without a transplant my death was certain. Readers of this blog know the emotions that I went … Continue reading

Posted in chronic illness, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, religion, transplant | Tagged | 9 Comments

Status: Wed May 16′ , 4:45 am

My sister Gloria spent the night with me. She was my guardian angel. She tracked down nurses and medicines and made me comfortable. I started out today with a walk around the wing block . Robin and I are praying … Continue reading

Posted in End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease | 5 Comments

May 10

Hi everyone. Don’t see a more in-depth post from my sister glory that may be coming later. I wanted to be sure to let all you people who read my blog have a little bit of an update. Wow, it’s … Continue reading

Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God | 1 Comment

Cribbage, wheezes, new hat and, oh yeah, A TRANSPLANT DATE!

Picture this, on one side of an antique trunk sits an 80 year old Korean War vet who is a whiz with numbers. On the other side sits someone whom you are sure is a pregnant man with his giant … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Find God, hope, Jesus, Liver disease, NASH, organ donation, Uncategorized | Tagged , , , , , , , , , , , , , , , | 7 Comments

When your “innie” becomes an “outie”

When Robin was pregnant with each of our three kids her tiny frame meant she had a giant belly. She was one of those women who was all belly. We were pretty excited and we joked a lot. I remember … Continue reading

Posted in facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , | 3 Comments

Liver disease may take my life but it will not take my LIFE

New life. Today I felt well enough to hold newborn Stephen Willette. Apart from a concentrated effort to keep my emotions in check, I breathed deep. There’s something about a newborn baby that gives hope and renewal. I felt his … Continue reading

Posted in discouragement, facing death, Fatty liver | Tagged , , , , , , , , , | 3 Comments

My liver transplant is in the near future

Neither Robin nor I were prepared for the news Dr. Amy Tien gave us at Lahey. She simply said she is recommending me for a live donor liver transplant. She noted all the things I’ve been through since May, ordered … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Lahey Clinic, Liver disease | Tagged , , , , , , , , , , , | 6 Comments

If God is real, why …

A lot of people don’t get the God thing that I’ve been writing about. I understand. I see the morons on the news picketing at funerals too. I see red-faced screamers yelling into their bullhorns looking like they are going … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, hope, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, peace, religion, vision | Tagged , , , , , , , , , , | 5 Comments

Update: what’s my current status

I’ve had people asking what my status is. Am I “on the list” for a transplant or not? It’s all pretty confusing but I’ll try my best to bring you up to speed. Each time my MELD score climbs above … Continue reading

Posted in Christianity, chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, handicapped, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | 3 Comments

When you’re weak

Yeah, I struggle. I get depressed. I want to give up, then I want to fight. I feel far from God. I feel closer than ever. I feel alone. I feel surrounded. Good days. Bad days. And in it all, … Continue reading

Posted in chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, handicapped, hope, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , | Leave a comment