Category Archives: End Stage Liver Disease

Our transplant story in 2 minutes. Please watch and share.

Josh and I were just at Soulfest 2012 with thousands of music fans in Gilford, NH. We were asked to share our liver transplant story and they put together a professionally produced video that gave us the opportunity to encourage … Continue reading

Posted in End Stage Liver Disease, facing death, Fatty liver, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , | 1 Comment

You have 5 minutes. Go!

My friend AJ could sell an ice cube to an Eskimo. He’s a people person with an enthusiasm and positive attitude that will not quit. It’s like he has a magnet inside him that makes you want to be around him. … Continue reading

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Hey fatso! Are you ready yet?

It’s time. You know it is. It has to be. Your doctor has told you. Your wife has hinted or your husband has avoided the hornets’ nest for the most part. You’re too fat, right? I remember the first time … Continue reading

Posted in diet, direction, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Liver disease, NASH, Organ transplant | Tagged , , , , , , , , , , , , , , , , , , , , | 6 Comments

I can face tomorrow

My reader and now online friend, Kathleen Heseltine, sent me this hymn excerpt tonight in a Facebook message. She has been a consistent encouragement to me during this transplant journey of mine. As soon as I started reading these familiar … Continue reading

Posted in change, Christianity, chronic illness, discouragement, End Stage Liver Disease, Find God, Jesus | Tagged , , , , , , , , , , | 3 Comments

First a new liver and now a new baby!

Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , | 2 Comments

Got goals? Mine have changed

It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, pain, transplant | Tagged , , , , | 4 Comments

Status update

I’m lying here in my hospital bed watching “the Big Bang theory” and figured I would give you a status report. I had blood drawn, a CAT scan, chest x-ray, and blood cultures. I won’t know any of the results … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 6 Comments

Good reports!

A brief update: Josh and I just had our one month follow up appointments at Lahey and everything looks great! Josh is nearing being cleared to do whatever he wants. He’s a popular guy among the staff. All of my … Continue reading

Posted in End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , | 5 Comments

Does God send pain and disease to get his jollies?

Face it. Some days kinda suck. It’s the reality of life. I think without some sucky days that we would not appreciate the good days as much. I think I’m really going to appreciate tomorrow because today? Not so much. I’m … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Lahey Clinic, Liver disease | Tagged , , , , , , , , | 8 Comments

Weird to realize

Ya know what? I just realized something. Despite the pains of healing from my transplant … I haven’t felt this good in a year – alert, sharp, some energy. For the past year I have just felt “sick” all the … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 8 Comments

Pictures – some I have no memory of

Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged | 7 Comments

Status: Wed May 16′ , 4:45 am

My sister Gloria spent the night with me. She was my guardian angel. She tracked down nurses and medicines and made me comfortable. I started out today with a walk around the wing block . Robin and I are praying … Continue reading

Posted in End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease | 5 Comments

May 10

Hi everyone. Don’t see a more in-depth post from my sister glory that may be coming later. I wanted to be sure to let all you people who read my blog have a little bit of an update. Wow, it’s … Continue reading

Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God | 1 Comment

Cribbage, wheezes, new hat and, oh yeah, A TRANSPLANT DATE!

Picture this, on one side of an antique trunk sits an 80 year old Korean War vet who is a whiz with numbers. On the other side sits someone whom you are sure is a pregnant man with his giant … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Find God, hope, Jesus, Liver disease, NASH, organ donation, Uncategorized | Tagged , , , , , , , , , , , , , , , | 7 Comments

My belly is bigger than the Goodyear Blimp!

Picture this. Tonight you go to bed weighing 150. Tomorrow you wake up weighing 170. Your pants are tight. After dinner you change into comfy sweats. The next morning you step on the scale and it says 181. What???? It’s … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Find God, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Leave a comment