Category Archives: End Stage Liver Disease

Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

Is life after liver transplant “normal?” Not exactly.

“So, ah, are you, um, like, normal now?” The question came from a friend I hadn’t seen since before my liver transplant. It’s a fair, yet somewhat awkward, question. Am I normal now that I am approaching the 21st month … Continue reading

Posted in chronic illness, End Stage Liver Disease, handicapped, Liver disease, Organ transplant | Tagged , , , , , , , , , , , | 5 Comments

I can’t breathe …

There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , | 29 Comments

Where do you find peace? Where do you soak it in?

Think of a favorite place; a place where you feel peace saturate your soul. Do you have such a place? I have friends who will think of the vast view at the top of a mountain trail while others will … Continue reading

Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Find God, hope, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , | 2 Comments

Life is full of ironies. This one gives me chills.

Well, ain’t that ironic? Some ironies make me tilt my head. Why do we park on driveways and drive on parkways? Why do they call them apartments when they are so close together? Shouldn’t they be closements? Iceland is green and … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Find God, hope, Jesus, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , , , , , , | 4 Comments

The bullies in your life are wrong

So, yeah, I’m writing a book. It’s a book about me. My journey. My story. It started out being a blend of my blog and reflections on the past two years. It was going to be about liver disease, transplants … Continue reading

Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, hopeless, Jesus, Liver disease | Tagged , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Rust, bust, turn to dust and break up in the end?

Just over a year ago we moved into our new little Westbrook house. It was a bittersweet time. It was bitter because we could no longer afford the house we built in 2000, but sweet in that our new home … Continue reading

Posted in change, chronic illness, church planting, community, Country music, depression, discouragement, End Stage Liver Disease, facing death, handicapped, Liver disease, organ donation, Organ transplant, Tim McGraw, transplant | Tagged , , , , , , , , , , , , , , , , , | 3 Comments