Category Archives: End Stage Liver Disease

Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

Is life after liver transplant “normal?” Not exactly.

“So, ah, are you, um, like, normal now?” The question came from a friend I hadn’t seen since before my liver transplant. It’s a fair, yet somewhat awkward, question. Am I normal now that I am approaching the 21st month … Continue reading

Posted in chronic illness, End Stage Liver Disease, handicapped, Liver disease, Organ transplant | Tagged , , , , , , , , , , , | 5 Comments

I can’t breathe …

There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , | 29 Comments

Where do you find peace? Where do you soak it in?

Think of a favorite place; a place where you feel peace saturate your soul. Do you have such a place? I have friends who will think of the vast view at the top of a mountain trail while others will … Continue reading

Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Find God, hope, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , | 2 Comments

Life is full of ironies. This one gives me chills.

Well, ain’t that ironic? Some ironies make me tilt my head. Why do we park on driveways and drive on parkways? Why do they call them apartments when they are so close together? Shouldn’t they be closements? Iceland is green and … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Find God, hope, Jesus, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , , , , , , | 4 Comments

The bullies in your life are wrong

So, yeah, I’m writing a book. It’s a book about me. My journey. My story. It started out being a blend of my blog and reflections on the past two years. It was going to be about liver disease, transplants … Continue reading

Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, hopeless, Jesus, Liver disease | Tagged , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Rust, bust, turn to dust and break up in the end?

Just over a year ago we moved into our new little Westbrook house. It was a bittersweet time. It was bitter because we could no longer afford the house we built in 2000, but sweet in that our new home … Continue reading

Posted in change, chronic illness, church planting, community, Country music, depression, discouragement, End Stage Liver Disease, facing death, handicapped, Liver disease, organ donation, Organ transplant, Tim McGraw, transplant | Tagged , , , , , , , , , , , , , , , , , | 3 Comments

Insomnia, Liver disease, Duck Dynasty and Infomercials..

I watch some pretty weird TV shows. Well, maybe they aren’t weird but they certainly are different. Maybe I’m getting old but shows like “Two Broke Girls,” and “Two and a Half Men” are just so crass that I feel … Continue reading

Posted in change, chronic illness, End Stage Liver Disease, Fatty Liver Disease, Organ transplant | Tagged , , , , , , , , , , , , , , , , , , | 3 Comments

Today my friend begins a new life!

Lahey Clinic, Burlington, MA 7:30 AM Lydia gave her mom thumbs up as they wheeled her to the operating room. 8:30 Anne Marie is now heading into the operating room to receive her new liver. It has begun! Anne Marie’s … Continue reading

Posted in chronic illness, End Stage Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged | 1 Comment

Do you remember last Christmas? I don’t.

I’m thoroughly enjoying this Christmas season. I mean, apart from all the normal bickering about “the reason for the season,” I’m enjoying looking at Christmas lights, hearing Christmas carols and opening cards brought each day by the postman. (Aside: I … Continue reading

Posted in change, Christianity, Christmas, chronic illness, End Stage Liver Disease, facing death, hope, Liver disease, organ donation, Organ transplant | Tagged , , , , , , , , , , | 1 Comment

I used to be thankful … but now?

Today’s the day. It’s the day when everyone in the U.S. pauses and thinks about being thankful. Thankful Facebook statuses roll up my screen one after another. Thankful for family, friends, spouse, pets, house, new job, provision, troops, Jesus, new … Continue reading

Posted in change, Christianity, End Stage Liver Disease, facing death, Fatty Liver Disease, hope, Jesus, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Um, I like boobies …

Boobs. It’s National Boob Month. Football players wear pink cleats, baseball players swing pink bats and teenage boys get tossed out of school for wearing t-shirts proclaiming, “I like boobies!” We all know they are just trying to get away … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

You are so pushy! Thank you.

Do you remember back almost about a year ago? One of the first fundraisers to help with my transplant was a rubber bracelet that said “P U S H.” It was an acronym for “pray until something happens” or some … Continue reading

Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Liver disease, NASH, organ donation, Organ transplant, pain | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , | 4 Comments

Am I out of the woods?

I love vanilla soft serve ice cream. My wife hates it. Since most soft serve places don’t offer hard ice cream we usually end up at shops with pretty teenage scooper girls digging into ice cream buckets. While I prefer … Continue reading

Posted in change, chronic illness, depression, discouragement, End Stage Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , | 8 Comments