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Category Archives: End Stage Liver Disease
Misinformation in the transplant community?
If you believed in your transplant team enough to have them cut into you, cut out an organ and sew in a donated one, why do you refuse to believe them when it comes to vaccines? Continue reading
Posted in End Stage Liver Disease, Lahey Clinic, NASH, organ donation, Organ transplant
Tagged anti-vaxx, COVID, Donate Life, fact check, misinformation, tansplant, vaccines
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Folding bikes, sunshine and hope for transplant.
Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading
Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery
Tagged American Liver Foundation, life after transplant, liver transplant, MELD, NASH, organ donation, transplant, transplant recovery
1 Comment
Is life after liver transplant “normal?” Not exactly.
“So, ah, are you, um, like, normal now?” The question came from a friend I hadn’t seen since before my liver transplant. It’s a fair, yet somewhat awkward, question. Am I normal now that I am approaching the 21st month … Continue reading
Posted in chronic illness, End Stage Liver Disease, handicapped, Liver disease, Organ transplant
Tagged chronic illness, cirrhosis, forget words, hepatic encephalopathy, Liver disease, liver transplant, made strong in weakness, memory loss, NASH, Organ transplant, recovery, Scott Linscott
5 Comments
I can’t breathe …
There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged chronic illness, cirrhosis, death, Donate Life, Facing death, Fatty liver, fear, Graft verses Host, GVHD, health, Liver disease, liver transplant, loss, organ donation, Organ transplant, transplant
29 Comments
Where do you find peace? Where do you soak it in?
Think of a favorite place; a place where you feel peace saturate your soul. Do you have such a place? I have friends who will think of the vast view at the top of a mountain trail while others will … Continue reading
Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Find God, hope, Liver disease, organ donation, Organ transplant, transplant
Tagged chronic illness, Chronic pain, cirrhosis, depression, finding peace, helping a friend with chronic illness, hope, Liver disease, liver transplant, NASH, organ donation, transplant
2 Comments
Life is full of ironies. This one gives me chills.
Well, ain’t that ironic? Some ironies make me tilt my head. Why do we park on driveways and drive on parkways? Why do they call them apartments when they are so close together? Shouldn’t they be closements? Iceland is green and … Continue reading
Posted in chronic illness, End Stage Liver Disease, facing death, Find God, hope, Jesus, Organ transplant, transplant
Tagged chronic illness, cirrhosis, Donate Life, Facing death, faith, gospel, healing, health, help, hope, inspirational story, ironic, ironies, irony, Liver disease, liver transplant, Motivation, organ donation, Rotary, speaker, transplant
4 Comments
Do you ever feel like a number?
I’ve read the whole book cover to cover numerous times. It’s a well-written, rhythmic read that I’d classify as an American classic. But, every time I read it, I’m left with a sad, empathetic realization that we never learn the … Continue reading
Posted in Christianity, chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Jesus, Lahey Clinic, Organ transplant, relationship, transplant
Tagged 24601, Christian, chronic illness, Chronic pain, cirrhosis, depression, dialysis, dilysis, faith, feel like a number, following Jesus, Green Eggs and Ham, help, hope, Jean Valjean, Lahey Clinic, Lahey Hospital. Pomfret, Liver disease, liver transplant, loneliness, name, names, Pomposelli, prodigal, remember, transplant, Zacchaeus
1 Comment
Insomnia, Liver disease, Duck Dynasty and Infomercials..
I watch some pretty weird TV shows. Well, maybe they aren’t weird but they certainly are different. Maybe I’m getting old but shows like “Two Broke Girls,” and “Two and a Half Men” are just so crass that I feel … Continue reading
Posted in change, chronic illness, End Stage Liver Disease, Fatty Liver Disease, Organ transplant
Tagged American Pickers, As Seen on TV, changes, Doomsday Preppers, Duck Dynasty, end stage, Forever Lazy, Furniture Fix, humor, Ice Road Truckers, infomercial, insomnia, Liver disease, Pawn Stars, perspective, Slap Chop, sleeplessnes, Storage Wars, transplant
3 Comments
Today my friend begins a new life!
Lahey Clinic, Burlington, MA 7:30 AM Lydia gave her mom thumbs up as they wheeled her to the operating room. 8:30 Anne Marie is now heading into the operating room to receive her new liver. It has begun! Anne Marie’s … Continue reading
Do you remember last Christmas? I don’t.
I’m thoroughly enjoying this Christmas season. I mean, apart from all the normal bickering about “the reason for the season,” I’m enjoying looking at Christmas lights, hearing Christmas carols and opening cards brought each day by the postman. (Aside: I … Continue reading
Posted in change, Christianity, Christmas, chronic illness, End Stage Liver Disease, facing death, hope, Liver disease, organ donation, Organ transplant
Tagged Christ in Christmas, christmas story, encephalopathy, forget, forgive, home, lifestyle, nativity, religion, spirituality, traditions
1 Comment
I used to be thankful … but now?
Today’s the day. It’s the day when everyone in the U.S. pauses and thinks about being thankful. Thankful Facebook statuses roll up my screen one after another. Thankful for family, friends, spouse, pets, house, new job, provision, troops, Jesus, new … Continue reading
Posted in change, Christianity, End Stage Liver Disease, facing death, Fatty Liver Disease, hope, Jesus, organ donation, Organ transplant, transplant
Tagged Chronic pain, cirrhosis, death, Facing death, family, fear, group, holiday, hope, illness, Lahey Clinic, Linscott, Liver disease, organ donor, organdonor.gov, support, thankful, thanks, thanksgiving, Thanksgiving idea, transplant, waiting
2 Comments
Um, I like boobies …
Boobs. It’s National Boob Month. Football players wear pink cleats, baseball players swing pink bats and teenage boys get tossed out of school for wearing t-shirts proclaiming, “I like boobies!” We all know they are just trying to get away … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged <3 Boobies, A feel a day keeps the doctor away, American Liver Foundation, Big or small save them all, Boobs, Boobs like these are worth fighting for, Boobs: They could use your support, breast cancer, breast cancer awareness, cirrhosis, Don't let mounds develop in your mounds, Donate Life, Don’t let cancer steal 2nd base, Fatty liver, Have you had your boobs squeezed lately, healing, Hope for Hooters, I heart boobies, I’m here for the boobs, Liver, liver awareness month. health, Liver disease, liver transplant, Maine, my real ones tried to kill me, NASH, October, Operation: Healthy Hooters, organ donation, Save the Girls, Save the Tatas, Save the woman behind these boobs!, Sweat and Tears, These babies are self-examined, transplant, Yes my boobs are fake
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You are so pushy! Thank you.
Do you remember back almost about a year ago? One of the first fundraisers to help with my transplant was a rubber bracelet that said “P U S H.” It was an acronym for “pray until something happens” or some … Continue reading
Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Liver disease, NASH, organ donation, Organ transplant, pain
Tagged bear with one another, bracelet, cancer community center, Christian, chronic illness, Chronic pain, cirrhosis, depression, direction, family, fight back festival, healing, help, hope, Jake Groom, Lahey Clinic, Liver, Liver disease, liver transplant, love your liver, NASH, never quit, organ donation, Pineland, PUSH, quitting, transplant
4 Comments
Drinking from the Same Dipper 