Category Archives: discouragement

I can face tomorrow

My reader and now online friend, Kathleen Heseltine, sent me this hymn excerpt tonight in a Facebook message. She has been a consistent encouragement to me during this transplant journey of mine. As soon as I started reading these familiar … Continue reading

Posted in change, Christianity, chronic illness, discouragement, End Stage Liver Disease, Find God, Jesus | Tagged , , , , , , , , , , | 3 Comments

Got goals? Mine have changed

It was just over year ago when my goal was to plant a new thing. I wanted to begin a faith community that was different than the standard church. It was not going to be built on tradition or institutionalism. … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, pain, transplant | Tagged , , , , | 4 Comments

Weird to realize

Ya know what? I just realized something. Despite the pains of healing from my transplant … I haven’t felt this good in a year – alert, sharp, some energy. For the past year I have just felt “sick” all the … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged | 8 Comments

I’ll try my best and I will update it is Tuesday, May 15.

Biggest challenge at the moment is pain management. Trying to get me off narcotics. Released off the ones that go through the IV. And onto the ones you take by mouth. Our trouble seems to be that I don’t get … Continue reading

Posted in chronic illness, discipleship, discouragement, Jesus, Lahey Clinic, Liver disease, organ donation, Organ transplant | 3 Comments

May 10

Hi everyone. Don’t see a more in-depth post from my sister glory that may be coming later. I wanted to be sure to let all you people who read my blog have a little bit of an update. Wow, it’s … Continue reading

Posted in discouragement, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Find God | 1 Comment

Cribbage, wheezes, new hat and, oh yeah, A TRANSPLANT DATE!

Picture this, on one side of an antique trunk sits an 80 year old Korean War vet who is a whiz with numbers. On the other side sits someone whom you are sure is a pregnant man with his giant … Continue reading

Posted in chronic illness, discouragement, End Stage Liver Disease, facing death, Find God, hope, Jesus, Liver disease, NASH, organ donation, Uncategorized | Tagged , , , , , , , , , , , , , , , | 7 Comments

My belly is bigger than the Goodyear Blimp!

Picture this. Tonight you go to bed weighing 150. Tomorrow you wake up weighing 170. Your pants are tight. After dinner you change into comfy sweats. The next morning you step on the scale and it says 181. What???? It’s … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Find God, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Leave a comment

Liver disease may take my life but it will not take my LIFE

New life. Today I felt well enough to hold newborn Stephen Willette. Apart from a concentrated effort to keep my emotions in check, I breathed deep. There’s something about a newborn baby that gives hope and renewal. I felt his … Continue reading

Posted in discouragement, facing death, Fatty liver | Tagged , , , , , , , , , | 3 Comments

My liver transplant is in the near future

Neither Robin nor I were prepared for the news Dr. Amy Tien gave us at Lahey. She simply said she is recommending me for a live donor liver transplant. She noted all the things I’ve been through since May, ordered … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, Jesus, Lahey Clinic, Liver disease | Tagged , , , , , , , , , , , | 6 Comments

If God is real, why …

A lot of people don’t get the God thing that I’ve been writing about. I understand. I see the morons on the news picketing at funerals too. I see red-faced screamers yelling into their bullhorns looking like they are going … Continue reading

Posted in Christianity, chronic illness, direction, discipleship, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, hope, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, peace, religion, vision | Tagged , , , , , , , , , , | 5 Comments

Update: what’s my current status

I’ve had people asking what my status is. Am I “on the list” for a transplant or not? It’s all pretty confusing but I’ll try my best to bring you up to speed. Each time my MELD score climbs above … Continue reading

Posted in Christianity, chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, handicapped, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | 3 Comments

When you’re weak

Yeah, I struggle. I get depressed. I want to give up, then I want to fight. I feel far from God. I feel closer than ever. I feel alone. I feel surrounded. Good days. Bad days. And in it all, … Continue reading

Posted in chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, handicapped, hope, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , | Leave a comment

Confessions of a former wheelchair snob

I’m just going to put this out there, as insensitive and politically incorrect as it is. It’s gonna shock those of my readers who paint me as a martyr, super-saint or spiritual giant. What can I say, that was a … Continue reading

Posted in accessibility, change, Christianity, chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Jesus, Liver disease, liver keys, ministry, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , | 7 Comments

I hate my couch

I have a nice, comfy couch. We used to have a good relationship. I was anxious to see it, pull up a pillow and snuggle in to watch my Red Sox crushing opponents. But things have changed between my green … Continue reading

Posted in chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, hope, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | 5 Comments

Got a big, swollen gut?

This morning’s devotional smacked me right between the eyes. When people have asked me what I want most, my answer has consistently been that, suffer or not, people would see Jesus in me. Max Lucado explains it so much better … Continue reading

Posted in Christianity, chronic illness, discouragement, facing death, Fatty liver, Fatty Liver Disease, Find God, hope, Lahey Clinic, Liver disease, liver keys, NASH, organ donation, Organ transplant, peace | Tagged , , , , | 4 Comments