Category Archives: chronic illness

Do you remember last Christmas? I don’t.

I’m thoroughly enjoying this Christmas season. I mean, apart from all the normal bickering about “the reason for the season,” I’m enjoying looking at Christmas lights, hearing Christmas carols and opening cards brought each day by the postman. (Aside: I … Continue reading

Posted in change, Christianity, Christmas, chronic illness, End Stage Liver Disease, facing death, hope, Liver disease, organ donation, Organ transplant | Tagged , , , , , , , , , , | 1 Comment

My Aunt Betty just got THE CALL!

My Aunt Betty just got the call! She’s heading to Lahey for her liver transplant! Pray! I’m so excited for her. Remember when I was at the stage when I couldn’t stay out of the hospital for more than 10 … Continue reading

Posted in chronic illness, Fatty Liver Disease, Jesus, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , | 5 Comments

Um, I like boobies …

Boobs. It’s National Boob Month. Football players wear pink cleats, baseball players swing pink bats and teenage boys get tossed out of school for wearing t-shirts proclaiming, “I like boobies!” We all know they are just trying to get away … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

I saw God on the corner this morning.

I have a cold. Yeah, so what, who doesn’t? Yesterday I realized I also have a new label slapped on my back as I heard myself tell someone, “I’m immunosuppressed.” I never thought that would be part of my introductions. … Continue reading

Posted in Christianity, chronic illness, community, Find God | Tagged , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Why do I get to live while others die?

I’ve had a few experiences in the last week that I don’t really know how to process. I’m feeling kind of down. Okay, I’ll spill it. I met a few organ donor families who are filled with grief. I feel … Continue reading

Posted in anger, chronic illness, depression, Liver disease, love, organ donation, Organ transplant | Tagged , , , , , , , , , , , , , | 3 Comments

Am I out of the woods?

I love vanilla soft serve ice cream. My wife hates it. Since most soft serve places don’t offer hard ice cream we usually end up at shops with pretty teenage scooper girls digging into ice cream buckets. While I prefer … Continue reading

Posted in change, chronic illness, depression, discouragement, End Stage Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , | 8 Comments

Yesterday, all my troubles seemed so far away

Saturday day was awesome. For the first time since I can remember I felt 98% normal. I felt like I was not one of the .000017% percent of Americans receiving a liver transplant this year. I felt like Pinochio after … Continue reading

Posted in change, chronic illness, depression, discouragement, Fatty liver, Fatty Liver Disease, hope, Liver disease, organ donation, Organ transplant, pain, transplant | Tagged , , , , , , , , , , , , | 4 Comments

You have 5 minutes. Go!

My friend AJ could sell an ice cube to an Eskimo. He’s a people person with an enthusiasm and positive attitude that will not quit. It’s like he has a magnet inside him that makes you want to be around him. … Continue reading

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MONDAY UPDATE: issues & surprises

The antibiotics did not trigger a “code blue” and are now waging war with the e.coli in my system. The last cephalosporin I took was quite an event culminating with a team of 12 reviving me. My doc is not … Continue reading

Posted in chronic illness, Liver disease, organ donation, Organ transplant, pain | 6 Comments

My kids are adults and it’s pretty cool

I miss the days of Little League and rat pack soccer. I miss the whistle blowing every four seconds while I watch 9 to 12-year-olds run around and play field hockey. I miss Discovery Zone and, as Bill Cosby calls … Continue reading

Posted in change, Christianity, chronic illness, church planting, direction | Tagged , , , , , , , , , , , | 5 Comments

It’s not just me

I share the following from one of my readers who is writing his own story in the face of suffering… God bless you Scott. I totally agree with you. I went through a very debilitating illness myself two years ago. … Continue reading

Posted in Christianity, chronic illness, depression, discouragement, Find God, hopeless, Jesus, ministry, pain | Tagged , , | 3 Comments

Thoreau or Eastman? We’re writing our stories.

“Hey kid! What’s your story?” I can hear my dad asking. It’s a bit of a strange question, isn’t it? I mean, if you’ve never heard it asked before, how might you answer? Is he asking what my favorite story … Continue reading

Posted in chronic illness, discipleship, discouragement, Fatty Liver Disease, Liver disease, NASH, transplant | Tagged , , , , , , , , , , , , , | 6 Comments

I can face tomorrow

My reader and now online friend, Kathleen Heseltine, sent me this hymn excerpt tonight in a Facebook message. She has been a consistent encouragement to me during this transplant journey of mine. As soon as I started reading these familiar … Continue reading

Posted in change, Christianity, chronic illness, discouragement, End Stage Liver Disease, Find God, Jesus | Tagged , , , , , , , , , , | 3 Comments

First a new liver and now a new baby!

Yupp, that’s it, Robin’s preggers. Haha . Noooooo, not really. But we do have a new baby, in a way. We now have a four month old miniature schnauzer puppy. We got her yesterday as a gift from my sisters. … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant | Tagged , , , | 2 Comments

Goofing! 2012 Sexiest …

Gail made fun of my pink shirt so I decided some tongue-in-cheek writing fun was in order… From 6/21/12 GQ Magazine – (advance preview cover story) FROM YELLOW TO PINK 2012’s Sexiest Liver Transplant Recipient, Scott Linscott, is looking stellar … Continue reading

Posted in chronic illness, Liver disease, organ donation, Organ transplant | Tagged , , | 4 Comments