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Category Archives: chronic illness
Finding Beauty in the Rain
Some people are the “glass half empty” type. Others are “glass half full.” Me? I try to be happy that I have a glass at all. Even an empty glass has potential. It’s easy to focus on the negatives in … Continue reading
Christmas isn’t what we think it is.
“With” is a powerful word. It is an important word. The word “with” is a preposition because it exists to indicate associations, togetherness, and connections between things and people. Yawn. What is this, a grammar lesson? Hang tight, read on. Stay … Continue reading
Posted in Christmas, chronic illness, depression, facing death, hope, hopeless, peace, relationship
Tagged alone, angels, anger, broken, brokenness, Christmas, conflict, depression, divorce, Emmanuel, gifts, God with us, grief, Immanuel, materialism, poor, shepherds
3 Comments
Folding bikes, sunshine and hope for transplant.
Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading
Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery
Tagged American Liver Foundation, life after transplant, liver transplant, MELD, NASH, organ donation, transplant, transplant recovery
1 Comment
Is life after liver transplant “normal?” Not exactly.
“So, ah, are you, um, like, normal now?” The question came from a friend I hadn’t seen since before my liver transplant. It’s a fair, yet somewhat awkward, question. Am I normal now that I am approaching the 21st month … Continue reading
Posted in chronic illness, End Stage Liver Disease, handicapped, Liver disease, Organ transplant
Tagged chronic illness, cirrhosis, forget words, hepatic encephalopathy, Liver disease, liver transplant, made strong in weakness, memory loss, NASH, Organ transplant, recovery, Scott Linscott
5 Comments
I can’t breathe …
There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading
Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant
Tagged chronic illness, cirrhosis, death, Donate Life, Facing death, Fatty liver, fear, Graft verses Host, GVHD, health, Liver disease, liver transplant, loss, organ donation, Organ transplant, transplant
29 Comments
Where do you find peace? Where do you soak it in?
Think of a favorite place; a place where you feel peace saturate your soul. Do you have such a place? I have friends who will think of the vast view at the top of a mountain trail while others will … Continue reading
Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Find God, hope, Liver disease, organ donation, Organ transplant, transplant
Tagged chronic illness, Chronic pain, cirrhosis, depression, finding peace, helping a friend with chronic illness, hope, Liver disease, liver transplant, NASH, organ donation, transplant
2 Comments
Life is full of ironies. This one gives me chills.
Well, ain’t that ironic? Some ironies make me tilt my head. Why do we park on driveways and drive on parkways? Why do they call them apartments when they are so close together? Shouldn’t they be closements? Iceland is green and … Continue reading
Posted in chronic illness, End Stage Liver Disease, facing death, Find God, hope, Jesus, Organ transplant, transplant
Tagged chronic illness, cirrhosis, Donate Life, Facing death, faith, gospel, healing, health, help, hope, inspirational story, ironic, ironies, irony, Liver disease, liver transplant, Motivation, organ donation, Rotary, speaker, transplant
4 Comments
Why do I get to live while others die?
I just don’t get it. I want life to be fair but I don’t worry about “fair” when things are going great. Who does? Have you ever seen a lottery winner shake her head and say, “I don’t know. Life’s … Continue reading
Posted in burnout, chronic illness, Liver disease
Tagged chronic illness, Chronic pain, cirrhosis, depression, faith, fear, healing, help, help for the hurting, hope, liver transplant, ministry, organ donation, transplant, transplant ministry
4 Comments
Do you ever feel like a number?
I’ve read the whole book cover to cover numerous times. It’s a well-written, rhythmic read that I’d classify as an American classic. But, every time I read it, I’m left with a sad, empathetic realization that we never learn the … Continue reading
Posted in Christianity, chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Jesus, Lahey Clinic, Organ transplant, relationship, transplant
Tagged 24601, Christian, chronic illness, Chronic pain, cirrhosis, depression, dialysis, dilysis, faith, feel like a number, following Jesus, Green Eggs and Ham, help, hope, Jean Valjean, Lahey Clinic, Lahey Hospital. Pomfret, Liver disease, liver transplant, loneliness, name, names, Pomposelli, prodigal, remember, transplant, Zacchaeus
1 Comment
Insomnia, Liver disease, Duck Dynasty and Infomercials..
I watch some pretty weird TV shows. Well, maybe they aren’t weird but they certainly are different. Maybe I’m getting old but shows like “Two Broke Girls,” and “Two and a Half Men” are just so crass that I feel … Continue reading
Posted in change, chronic illness, End Stage Liver Disease, Fatty Liver Disease, Organ transplant
Tagged American Pickers, As Seen on TV, changes, Doomsday Preppers, Duck Dynasty, end stage, Forever Lazy, Furniture Fix, humor, Ice Road Truckers, infomercial, insomnia, Liver disease, Pawn Stars, perspective, Slap Chop, sleeplessnes, Storage Wars, transplant
3 Comments
What has been the hardest part of this transplant journey?
I’m more than 8 months post transplant. There have been some very difficult challenges. I’m pretty sure you know that. But what has been the hardest part? Pain and discomfort? I can’t even describe the pain I felt at times. … Continue reading
Words fall like snow
Snow falling lightly. Pajama’s all day. A long chat with mom. Coffee pot decreasing. Dancing orange flames in the stove. Warm. Comfortable. Content. Silly text messages with my wife. Moments with my God. New life for a transplant friend, Smiling … Continue reading
Posted in chronic illness, direction, discouragement, Organ transplant, peace, simple, transplant
Tagged chronic illness, Chronic pain, cirrhosis, contentment, free verse, Life, Maine, new beginning, poetry, recovery, Scott Linscott, snow falling, surgery, transplant, Westbrook, whiter than snow
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Today my friend begins a new life!
Lahey Clinic, Burlington, MA 7:30 AM Lydia gave her mom thumbs up as they wheeled her to the operating room. 8:30 Anne Marie is now heading into the operating room to receive her new liver. It has begun! Anne Marie’s … Continue reading
