Category Archives: chronic illness

Finding Beauty in the Rain

Some people are the “glass half empty” type. Others are “glass half full.”  Me? I try to be happy that I have a glass at all. Even an empty glass has potential. It’s easy to focus on the negatives in … Continue reading

Posted in chronic illness, depression, discouragement, facing death, Liver disease, transplant recovery | Tagged , , , , , , , , , , , , , , | 1 Comment

Christmas isn’t what we think it is.

“With” is a powerful word. It is an important word. The word “with” is a preposition because it exists to indicate associations, togetherness, and connections between things and people. Yawn. What is this, a grammar lesson? Hang tight, read on. Stay … Continue reading

Posted in Christmas, chronic illness, depression, facing death, hope, hopeless, peace, relationship | Tagged , , , , , , , , , , , , , , , , | 3 Comments

Folding bikes, sunshine and hope for transplant.

Have you ever seen a folding travel bike? They’re pretty cool little engineering marvels. They are perfect for zipping around small areas and sightseeing. When you’re done, you fold them up, throw them in the trunk and head home. Robin … Continue reading

Posted in chronic illness, depression, End Stage Liver Disease, facing death, Fatty liver, Fatty Liver Disease, Lahey Clinic, Liver disease, NASH, organ donation, Organ transplant, transplant, transplant recovery | Tagged , , , , , , , | 1 Comment

Is life after liver transplant “normal?” Not exactly.

“So, ah, are you, um, like, normal now?” The question came from a friend I hadn’t seen since before my liver transplant. It’s a fair, yet somewhat awkward, question. Am I normal now that I am approaching the 21st month … Continue reading

Posted in chronic illness, End Stage Liver Disease, handicapped, Liver disease, Organ transplant | Tagged , , , , , , , , , , , | 5 Comments

I can’t breathe …

There’s a 50 pound bag of cement sitting on my chest. No, wait. There are two. They are so heavy that I can barely breathe. Crushing. Suffocating. But, the strange thing is that even though I feel like I have … Continue reading

Posted in chronic illness, End Stage Liver Disease, Fatty liver, Fatty Liver Disease, Liver disease, liver keys, NASH, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , | 29 Comments

Where do you find peace? Where do you soak it in?

Think of a favorite place; a place where you feel peace saturate your soul. Do you have such a place? I have friends who will think of the vast view at the top of a mountain trail while others will … Continue reading

Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, Find God, hope, Liver disease, organ donation, Organ transplant, transplant | Tagged , , , , , , , , , , , | 2 Comments

Life is full of ironies. This one gives me chills.

Well, ain’t that ironic? Some ironies make me tilt my head. Why do we park on driveways and drive on parkways? Why do they call them apartments when they are so close together? Shouldn’t they be closements? Iceland is green and … Continue reading

Posted in chronic illness, End Stage Liver Disease, facing death, Find God, hope, Jesus, Organ transplant, transplant | Tagged , , , , , , , , , , , , , , , , , , , , | 4 Comments

Why do I get to live while others die?

I just don’t get it. I want life to be fair but I don’t worry about “fair” when things are going great. Who does? Have you ever seen a lottery winner shake her head and say, “I don’t know. Life’s … Continue reading

Posted in burnout, chronic illness, Liver disease | Tagged , , , , , , , , , , , , , , | 4 Comments

The bullies in your life are wrong

So, yeah, I’m writing a book. It’s a book about me. My journey. My story. It started out being a blend of my blog and reflections on the past two years. It was going to be about liver disease, transplants … Continue reading

Posted in chronic illness, depression, discouragement, End Stage Liver Disease, facing death, hopeless, Jesus, Liver disease | Tagged , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Rust, bust, turn to dust and break up in the end?

Just over a year ago we moved into our new little Westbrook house. It was a bittersweet time. It was bitter because we could no longer afford the house we built in 2000, but sweet in that our new home … Continue reading

Posted in change, chronic illness, church planting, community, Country music, depression, discouragement, End Stage Liver Disease, facing death, handicapped, Liver disease, organ donation, Organ transplant, Tim McGraw, transplant | Tagged , , , , , , , , , , , , , , , , , | 3 Comments

Insomnia, Liver disease, Duck Dynasty and Infomercials..

I watch some pretty weird TV shows. Well, maybe they aren’t weird but they certainly are different. Maybe I’m getting old but shows like “Two Broke Girls,” and “Two and a Half Men” are just so crass that I feel … Continue reading

Posted in change, chronic illness, End Stage Liver Disease, Fatty Liver Disease, Organ transplant | Tagged , , , , , , , , , , , , , , , , , , | 3 Comments

What has been the hardest part of this transplant journey?

I’m more than 8 months post transplant. There have been some very difficult challenges. I’m pretty sure you know that. But what has been the hardest part? Pain and discomfort? I can’t even describe the pain I felt at times. … Continue reading

Posted in chronic illness | Tagged , , , , , , , , , , | 7 Comments

Words fall like snow

Snow falling lightly. Pajama’s all day. A long chat with mom. Coffee pot decreasing. Dancing orange flames in the stove. Warm. Comfortable. Content. Silly text messages with my wife. Moments with my God. New life for a transplant friend, Smiling … Continue reading

Posted in chronic illness, direction, discouragement, Organ transplant, peace, simple, transplant | Tagged , , , , , , , , , , , , , , , | Leave a comment

Today my friend begins a new life!

Lahey Clinic, Burlington, MA 7:30 AM Lydia gave her mom thumbs up as they wheeled her to the operating room. 8:30 Anne Marie is now heading into the operating room to receive her new liver. It has begun! Anne Marie’s … Continue reading

Posted in chronic illness, End Stage Liver Disease, Lahey Clinic, Liver disease, organ donation, Organ transplant, transplant | Tagged | 1 Comment