I am reposting this mostly for those visiting my friends who had their transplants recently.
I think all my visitors know these rules because everyone has seemed to follow them. Roommates visitors, however, show me we all still have stuff to learn so I’m posting the following which is mostly from this site with a few addendum on my part.
Here are some “do’s” for hospital visitors:
Do ask your patient’s permission to visit before you arrive. Ask her to be candid with you, and if she prefers you not visit, ask her if another day would be better, or if she would prefer you visit once she gets home. Many patients love visitors, but some just don’t feel up to it. Do your patient the courtesy of asking permission.
Do wash your hands and sanitize them before you touch the patient or hand the patient something you’ve been touching. If you wash your hands, then touch something else, like a telephone or…
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To my new friend Scott,
First I want to let you know I suck at writing and I can’t spell either but here goes…
I am not a transplant survivor or anything remotely close to it. I just read your blog “What has been the hardest part of this transplant journey” and I sobbed while reading it out loud to my husband. It has been so hard to understand and explain what is happening to me. Reading your blog was as if somehow you could see right into my very soul and I physically could feel you touch my heart. I feel like I know you somehow. And thank you!
So many of us have these same thoughts and feelings. I’ve heard from many.
I felt odd even writing it because it’s taboo to talk about. Putting it out there and admitting it even makes us feel more worthless when we are doing it. But, I want to tell you that discovering others who feel the way I do and helping others be able to share their feelings by sharing what I wrote has helped me.
I’ve found that bottling things up inside usually causes me more pain.
I am so glad that you were able to get those tears out and share it with your husband.
We WILL get through this together! Please write again or email. I’m a praying guy and you are on my list tonight. 🙂