DAY ONE

Yes , in post transplant care this will be Day One.  The were are are tears of joy,relief that the tranplant has taken place and both survived(always threat margin of risk) and the promise of many ill free years for both Scott and Josh.  So we all do the “Dance of Joy”

see above post(sister Gloria's learning curve)

Image

This is done with the knowledge that the first 2 weeks post transplant are the most critical for organ rejection and major complications for both our boys.  Josh is doing fantastic and handling his own self medicating.  Today will be an “UP” day for hopefully both of them. We have been told to remember what babies are like when they first arrive on the scene.  They eat (Josh and Scott will need close to a 100grams a day of protein) and SLEEP SLEEP SLEEP (our bodies were designed to restore-mend and in their case grow almost another whole organ)! This all normally expected in a 6-8 week period!

By Friday of this week Josh should be ready to be discharge to the hotel for a two day observation before heading to Westbrook for the most of the regrowth time  Scott is expected to remain at least 10 days before discharge.   Cards for Josh would be better mailed to the Westbrook home and for Scott if sent before May 15th  to the Lahey Clinic address.  If anyone desires visits please call Robin before venturing to the hospital and remember 15-30 minutes MAX.  So if you are traveling a long distance perhaps waiting for return to Westbrook would be more feasible.  Family will be gathering a help list for help with meals -errands-doctor checkups house cleaning help and for those who can maybe 2-4 hour shifts of care sitting. Due to allergies flowers are best avoided. Gifts to (to help with uncovered medical costs) are a good option.  PRAYERS always welcome and needed !  Friends of Robin(you know her) surprise her with a lunch date, fun date or just chilling together date.

Most likely by day 8 I would not be surprised to see Scott ready to grab his IPAD and restart his blogging!

About Scott Linscott

Living life to the fullest, walking in the dust of my Rabbi, creating art through photography and written word, speaking words of hope and encouragement at conferences, workshops, church and civic gatherings.
This entry was posted in Liver disease. Bookmark the permalink.

5 Responses to DAY ONE

  1. Beth Mick says:

    Ken says to hang in there, it’ll take a couple of days. He also says to memorize your meds. 4 years post and doing well. Praying for all of you, it’s a long haul kind of thing.

  2. Anonymous says:

    Praising the Lord for His ever present grace. Thanking the Lord for success. Praying for not neccessarily a rapid recovery but a proper, healthy recovery.

  3. Anonymous says:

    WONDERFUL NEWS! P.T.L. I will be praying for both uncomplicated recoveries and for the family. Mary McGaw

  4. Melanie says:

    Please post addresses for Scott, Josh, and Robin.

    Thank you.

  5. Joseph LaPera says:

    Great news. Thanks for blogging. Wonderful way to keep all up-to-date! Tell Scott my prayers are with him. Praying for a speedy recovery and a smooth start to a new life of health.

What are you thinking? Tell me!

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s