Once upon a time there was a radiant bald guy who was loved throughout the land. Well actually he was liked by a lot of people. Much to his dismay, RBG was disdained by a segment who didn’t see Him as “radiant” at all. They saw him more as a “Renegade Bald Guy.” He did not fit into their mold or follow their rules. But this is not a tale about about restrictions, rules and making the grade for a self-appointed grading group. This a tale about RBG, who lives in freedom, screwing up and being welcomed back. (Gal 5:5)
Back to our story, RBG was just living life, laughing, celebrating, growing and enjoying people. In fact, he was at the happiest place on earth, the home of The Mouse, when his tummy hurt. It hurt bad enough to go to Florida Hospital where they stuck sharp things into him and pulled fluids out of him. RBG joked, asked people about their life and made friends. It’s what RBG does.
He was not excited when the white coats told him he would would be staying for a sleepover. RBG usually liked sleepovers – campfires, s’mores, ghost stories and late night laughing but this was a crappy sleepover with no food, no drinks and evil phlebotomists hovering around his door ready to pounce. Thankfully RBG had the beautiful Jesus Loving Babe (JLB) by his side constantly holding his hand.
Unfortunately, the next morning, a no nonsense white coat strolled into his room with her nasty, little clipboard in her hand. RBG did not like her or her clipboard. White Coat Mean Lady looked RBG in the eye and told him he was going to die. She said it with the emotion of a takeout clerk saying, “Your pizza is ready.” She shook her head and told him his liver was scarred and “useless.” She told him to get a transplant and then turned and walked out. RBG instantly became Deflated Bald Guy as he and his babe wept together.
It has been a year of health hell since then. If you have not figured out the characters, I’m talking about me and my wife Robin (yeah, yeah, I know “radiant” might be a stretch for me). And now, on Monday, my new lease on life will be given. My son Josh will lie on a table and offer himself, the majority of his liver, to be inserted in me. Without a liver, doctor death was right, I am a goner. But now, I have a very good chance of taking my future grand kids for ice cream before dinner and making their mommies mad at me.
Two days ago, they drew 4 liters of fluid from my massive belly. 185 pound me is enveloped by a 240 pound swollen me. Docs wanted more but it’s stuck in in my cells or something. I’m kinda glad they didn’t get more.
I didn’t know that backache might be part of the result. Now I feel like I’ve been shoveling snow for 3 days. Or maybe I have been become a 98 year-old man all hunched over like Tim Conway on the old Carol Burnett Show. Wheelchairs, bad posture, weak memory and aches and pains. Yeah, this is kinda me right now:
Monday is a new beginning. The peace I feel right now is freaking me out a little. Things are really coming together. My friend Dan shared this scripture with me today:
2 Corinthians 1:4
New Living Translation (NLT) 1:4 He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.
My husband, Gary, and I are friends with Jay and Jeanne and you and your son Josh stayed at our house in Hampden several years ago. Gary was also diagnosed with PSC seven years ago and passed away on Thanksgiving Day. I at least know the pain your wife is going through and can definitely related to hearing your symptons. It sounds like you have a wonderful support system which we did also and I continue to have. The Lord is so good and, as you know, will guide and direct all the details of your transplant process. Your life is in HIS hands and there is no better place to be. I am one among many that have hope and pray that your surgery and recovery is a huge success.
Scott, you will go on to share the Glory of God to more people than you ever thought possible before. Your story is the same for many of us that are blessed to get a transplant. You will be able to give many people hope that they otherwise would not have had. An early congratulations and may God speed you and your son through this operation and recovery! Glory to the Father in Heaven who makes all things possible!
Praise God we love you and I ‘m am always up for a treat (or ice
cream ) before dinner right after my nap,,, LOL
Wow! What an amazing gift God has given you. To put us in fragile pieces of clay so that the all-surpassing power will be shining brilliantly and obviously not from us…but so much more easy to see that it IS from Jesus! Keep pressing on my brother!